BUBL LINK Catalogue of Internet Resources

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Muscular dystrophy

1. Ask NOAH About: Muscular Dystrophy
2. International Myotonic Dystrophy Organization
3. Leiden Muscular Dystrophy Data
4. Muscular Dystrophy Association
5. Muscular Dystrophy Association of Canada
6. Muscular Dystrophy Campaign
7. Muscular Dystrophy Ireland
8. National Institute of Neurological Disorders and Stroke
9. Neurological Disorder Resources

Comments: bubl@bubl.ac.uk

Ask NOAH About: Muscular Dystrophy

Collection of resources about muscular dystrophy including information about genetics, carriers, prenatal diagnosis, specific types of the disorder, and care and treatment. Provides a newsletter and magazine which contain the latest news and research findings in the area. Also available in Spanish.
     Author: NOAH: New York Online Access to Health
     Subjects: muscular dystrophy
     DeweyClass: 616.74
     Resource type: documents

International Myotonic Dystrophy Organization

US based group offering information about Myotonic and Congenital Myotonic Dystrophies, two variants of muscular dystrophy. Articles are presented within sections, and deal with sleeping problems and energy levels, heart problems, genetic information, personality and psychological changes, promising therapies, and disease management, to name a few.
     Author: International Myotonic Dystrophy Organization
     Subjects: muscular dystrophy
     DeweyClass: 616.748
     Resource type: documents

Leiden Muscular Dystrophy Data

Information for scientists performing research into and/or diagnosis of muscular dystrophy. Includes Duchenne and Becker muscular dystrophy, muscular dystrophy point mutation databases, diagnostic techniques, and research news.
     Author: Leiden University Medical Centre
     Subjects: muscular dystrophy
     DeweyClass: 616.748
     Resource type: documents

Muscular Dystrophy Association

Contains extensive information on all muscular dystrophies and related neuromuscular disorders including a glossary of terms and information about the genetics of muscular dystrophy.
     Author: Muscular Dystrophy Association
     Subjects: muscular dystrophy
     DeweyClass: 616.748
     Resource type: documents

Muscular Dystrophy Association of Canada

A national voluntary agency concerned with neuromuscular disorders and associated distress. Conducts research and creates awareness through education. Also provides services such as personal support programs.
     Author: Muscular Dystrophy Association of Canada
     Subjects: muscular dystrophy
     DeweyClass: 616.748
     Resource type: documents

Muscular Dystrophy Campaign

The Muscular Dystrophy Campaign is the only UK charity focussing on all muscular dystrophies and allied disorders. This resource provides practical, medical and emotional support for people affected by the conditions.
     Author: Muscular Dystrophy Campaign
     Subjects: muscular dystrophy
     DeweyClass: 616.74
     Resource type: service

Muscular Dystrophy Ireland

Voluntary organisation providing support for people with muscular dystrophy and their families by offering counselling, respite services, holidays, youth activities, independent living and training opportunities. Also features the Muscular Dystrophy Ireland magazine.
     Author: Muscular Dystrophy Ireland
     Subjects: muscular dystrophy
     DeweyClass: 616.748
     Resource type: institution

National Institute of Neurological Disorders and Stroke

The NINDS offers news, coordinates events, and conducts research into disorders of the brain and nervous system. Also provides information about specific conditions such as Alzheimer's disease, autism, cerebral palsy, epilepsy, and Parkinson's, together with details of associated organisations and publications.
     Author: National Institutes of Health
     Subjects: alzheimer's disease, autism, brain, cerebral palsy, cjd, dyslexia, gaucher disease, multiple sclerosis, muscular dystrophy, neurology, parkinson's disease, tourette syndrome
     DeweyClass: 616.8
     Resource type: institution

Neurological Disorder Resources

Index of resources for neurological disorders compiled by the University of Washington. Covers: Altzheimer's disease, Aphasia, Bell's Palsy, Creutzfeldt-Jakob Disease (CJD), Cerebrovascular Disease, Encephalitis, Epilepsy, Huntington's Disease, Neuromuscular/Motor Neuron Disorders, Parkinson's Disease and Other Movement Disorders, Phobias, Sleep Disorders, and Tourette Syndrome.
     Author: University of Washington
     Subjects: alzheimer's disease, anxiety disorders, epilepsy, multiple sclerosis, muscular dystrophy, neurology, pain, parkinson's disease, sleep, tourette syndrome
     DeweyClass: 616.8
     Resource type: index